....from diagnosis to a cure!
Our aims are:
To preserve and protect good health among, and relive the needs of, people living with Myotonic Dystrophy, their families and carers, in particular but not exclusively by:
* providing information, help and support to such people and their families and carers;
* making financial donations to support organisations and individuals carrying out research into Myotonic Dystrophy, the useful results of which will be published for public benefit; and
* raising awareness of Myotonic Dystrophy within the general public, medical and scientific communities.
We aim to support our community and we want a cure!
Unfortunately its not a simple task, so, we raise money to help the scientists and doctors increase knowledge of the disease, and hopefully develop treatments and one day a cure. We find ways to help and support each other, and give our children the opportunity meet others with Myotonic Dystrophy, making life a little bit easier for everyone.
We want to drive forward with research, whilst helping families deal with this life-changing condition. Facilitating research via advocacy for our community, supporting studies. and directly funding science and research where it is needed.
Congenital Myotonic Dystrophy is a rare condition, with families often having no knowledge of the genetic disorder until a child is born with CDM. Therefore it is essential we do all we can to raise awareness of the condition, and our group.
Through Cure DM we help families get together at events, we support each other at face to face meetings, and at a physical shop base (Cure DM Ventures CIC) we can provide information and support in person.
You can learn more about who we are here - Meet the Team!
"This site is owned and operated by CureDM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."