Raising Awareness

For professionals and Family members

The most important thing we can do is raise awareness of the condition. We are currently working with an impressive team of UK clinicians and researchers to produce a UK Clinical guideline. This is important, because being given a diagnosis and being told to 'google it' is not the best way for anyone to come to terms with this life changing event - and for many of us, it is a life changer - a bolt out of the blue.

 

We are working to produce a UK booklet for those living with DM, including the families and carers, to help them through what is often a very uncertain time.

Your input would be very helpful here, if you have any comments on what did or didn't help you upon diagnosis, we would love to hear your experiences. This would be a great help in spreading awareness to the Medical professionals involved, who might not be aware what we need to help us at this time. You can send any comments to: curedm@outlook.com

 

 

 

 

Published on 6 Oct 2015

Professor David Brooks, Imperial College London, and Dr Chris Turner, University College London Hospitals.

Muscular Dystrophy UK Conference.

 

 

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Remembrance Sunday

11th Nov 2020

As we approach Remembrance Sunday our thoughts turn to all of those individuals who sacrificed their lives so we could have a better future.
At Cure DM Charity we continue to work towards that same vision, to find a cure to this terrible disease which effects us all. We thought it would be a nice idea to create a Facebook profile picture to show our support up to the 11th November, and raise awareness of our Charity.
We would love it if everyone join us in changing their Facebook profile pictures and look forward to seeing Miles in the Poppy Field