....from diagnosis to a cure!
We are a group of parents and carers, all with something in common. We identified there was a need for greater support for families living with Myotonic Dystrophy, particularly the children with CDM and childhood onset and so CureDM was born.
We all experienced different things when our diagnosis was received, and we all needed support, friendship, and someone to talk to when things got tough. Someone who understood. We needed fun and positiveness for those rainy days, the hope for a treatments or even a cure for our loved ones!
We're doing what we can - and we hope you will be part of it. Between us we cover a range of situations, maybe you can relate and would like to talk to someone who is going through the same as you. Feel free to message us, we'd be happy to talk.
"This site is owned and operated by CureDM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."