We are a group of mums and grandmothers, all with something in common. We identified there was a need for greater support for families with CDM. None of us knew each other before connecting on a facebook page.
We all felt lost with our diagnosis and we are all coming to this from different personal situations, but we all want, no, we all NEED the same thing. We need support, we need friendship, we need someone to talk to when things get tough. Someone who understands. We need fun and positiveness for those rainy days, and we need a treatment and CURE for our loved ones!
We're doing what we can - and we hope you will be part of it. Between us we cover a range of situations, maybe you can relate and would like to talk to someone who is going through the same as you. Feel free to message us, we'd be happy to talk.
I'd like to introduce: Emma-Jayne, Kathy, Linda, Sian and Sarah.