ENSA study: RevEal the burdeN in daily life in myotonic dyStrophy due to myotoniA

This survey is open until the end of April, for people living with myotonic dystrophy (DM) or caregivers who can complete the survey on behalf of the person living with DM.

(Please mention seeing the survey via CureDM and please share in your DM communities/families)

The aim is to help with understanding of how DM impacts daily life, to gain insights on how to help raise global awareness and clinical care.

You can follow the link below, for more details and to complete the survey.

The ENSA survey has been developed in collaboration with people living with DM and doctors specialising in managing DM, along with Admedicum. The survey is sponsored by Lupin Neurosciences.