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Awareness Days


 DM Families day - Saturday 23rd July 2022


International Myotonic Dystrophy Awareness day - 15th September


Raising awareness of Myotonic Dystrophy is paramount to improving diagnosis, care and quality of life. Our International Myotonic Dystrophy Awareness day, held each year on September 15th, is a worldwide collaboration with the aim to raise the profile of DM.

Follow the link to our dedicated International DM Awareness day, to see our past achievements and future plans.


We also strive to celebrate the people we support, their families, siblings, loved ones and carers. Myotonic Dystrophy Families day is now in its 6th year, and we are delighted to be returning to a face to face met up in 2022.

Follow the link to the families day for details on our 2022 ALTON TOWERS meet=up, and to see some of our past gatherings and celebrations.