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This survey is open until the end of April, for people living with myotonic dystrophy (DM) or caregivers who can complete the survey on behalf of the person living with DM.
(Please mention seeing the survey via CureDM and please share in your DM communities/families)
The aim is to help with understanding of how DM impacts daily life, to gain insights on how to help raise global awareness and clinical care.
You can follow the link below, for more details and to complete the survey.
The ENSA survey has been developed in collaboration with people living with DM and doctors specialising in managing DM, along with Admedicum. The survey is sponsored by Lupin Neurosciences.
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Disclaimer:
"This site is owned and operated by CureDM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."
