....from diagnosis to a cure!
It was 2016 when we realised there were no awareness days for Myotonic Dystrophy. Well, we couldn't have that - so we started our own celebration day. The fourth Saturday of July became International Myotonic Dystrophy Family day!
This is a day for the community to come together to support eachother, celebrate the 'family' we have found. DM has many challenges, but one thing everyone agrees on is that we ARE a family. UK, USA, Europe, Asia.... wherever we are, we all face similar challenges, and the support our community provides is worth celebrating. Our family day has been described as a day of fun, a day to share stories and experiences within our groups, a day to feel part of something bigger, a day to meet up with others, raise awareness and positivity.
This is not a day for fundraising or campaigning - this is a FAMILY day.
Our next family day is on Saturday 23rd July 2022, and we would love you to get involved! How will you celebrate the day?
We have organised a fun filled day at ALTON TOWERS, and would love to see as many families there as possible.
READ MORE HERE
If you are unable to join us in person, but would like to support the day in your own way, please do get in touch - we would love to hear your ideas!
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