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Hollies Story

Our 2021 Awareness Day Photo Competition Winner!

My name is Hollie, and I was diagnosed with Myotonic Dystrophy in 2017.

I’ve had lots of hospital visits and tough times, but with support from family, friends, and the wider DM family, I feel that we are there for one another when needed. The condition is hard at times, but I have just completed a university degree in Photography, and I am looking forward to my graduation day.

When I was first told about the diagnosis, I thought I wasn’t going to be able to lead a ‘normal’ life, however I have done it!

Raising awareness about DM is vital as it can bring those with the condition closer together, as this photography competition has shown. Social Media is a great tool to share stories about the effects of the illness, and how each of us are unique in our experiences.

Continued awareness will shed light on DM, promoting knowledge, growth, and much needed research for this rare genetic condition.

Stay well, sending positive vibes to you all.