My name is Hollie, and I was diagnosed with Myotonic Dystrophy in 2017.
I’ve had lots of hospital visits and tough times, but with support from family, friends, and the wider DM family, I feel that we are there for one another when needed. The condition is hard at times, but I have just completed a university degree in Photography, and I am looking forward to my graduation day.
When I was first told about the diagnosis, I thought I wasn’t going to be able to lead a ‘normal’ life, however I have done it!
Raising awareness about DM is vital as it can bring those with the condition closer together, as this photography competition has shown. Social Media is a great tool to share stories about the effects of the illness, and how each of us are unique in our experiences.
Continued awareness will shed light on DM, promoting knowledge, growth, and much needed research for this rare genetic condition.
Stay well, sending positive vibes to you all.
Disclaimer:
"This site is owned and operated by CureDM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."