In June 2019 the International Myotonic Dystrophy Consortium 12th meeting was in Gothenburg, Sweden. Cure DM were delighted to attend, to represent the UK Myotonic Dystrophy community.
In a meeting of over 300 delegates, from 27 countries over 5 continents - we spent a fascinating week learning about what is new and upcoming in the world of Myotonic Dystrophy.
Below are a few small pieces on what we learned. Many studies are still ongoing, and knowledge is still increasing about this very complex condition.
We are delighted that the overall consensus was that researchers, clinicians and scientists should all work together, an International collaboration to help beat Myotonic Dystrophy.
Acknowledgements go to Peter Ashley and Emma-Jayne Ashley who attended the conference on behalf of Cure DM, and to AMO Pharma for providing sponsorship to make Cure DM's attendance at the event possible.
"This site is owned and operated by Cure DM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."