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Consensus Based DM Care Recommendations

This is the First EVER clinical care recommendations for adults living with Myotonic Dystrophy type 1, developed by 66 International Clinicians, all experienced in DM1 Patient care. There is a full document and a 4-page Quick Reference Guide.  Additional recommendations for Cardiologists and Respiratory Specialists will also be released in late 2018 or early 2019. The DM2 and Congenital Recommendations are set to follow very soon.

 RECENTLY PUBLISHED: DM1 Consensus-based Care Recommendations

You can see the Full version by Clicking here.

You can see the Quick Reference Guide here.

You can see the publication here.

Please print these and take them to your doctors and caregivers as the new standards of care we expect for DM1.