The Myotonic Dystrophy Foundation have published these amazing resources, and are sending some over to the Cure DM shop, to share with your clinicians and loved ones.
Please send me an email on firstname.lastname@example.org for more info, or contact the MDF who are also very happy to send them out to you.
This is the First EVER clinical care recommendations for adults living with Myotonic Dystrophy type 1, developed by 66 International Clinicians, all experienced in DM1 Patient care. There is a full document and a 4-page Quick Reference Guide.
RECENTLY PUBLISHED: DM1 Consensus-based Care Recommendations
RECENTLY PUBLISHED: DM2 Consensus-based Care Recommendations
RECENTLY PUBLISHED: Consensus-based Care Recommendations for Congenital DM
Please print these and take them to your doctors and caregivers as the new standards of care we expect for the condition. Alternatively - email us on email@example.com or contact the MDF via their website. https://www.myotonic.org.
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