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Consensus Based DM Care Recommendations

The Myotonic Dystrophy Foundation have published these amazing resources, and are sending some over to the Cure DM shop, to share with your clinicians and loved ones.

 

We have HARD COPIES of the Recommendations.  We have the FULL copies, the QUICK REFERENCE Guides for DM1, DM2 and Congenital DM.

Please send me an email on emma@cmmd.uk for more info, or contact the MDF who are also very happy to send them out to you.

https://www.myotonic.org.

 

This is the First EVER clinical care recommendations for adults living with Myotonic Dystrophy type 1, developed by 66 International Clinicians, all experienced in DM1 Patient care. There is a full document and a 4-page Quick Reference Guide. 

 RECENTLY PUBLISHED: DM1 Consensus-based Care Recommendations

You can see the Full version by Clicking here.

You can see the Quick Reference Guide here.

You can see the publication here.

 

 

 

RECENTLY PUBLISHED: DM2 Consensus-based Care Recommendations

You can see the Full version by Clicking here.

You can see the Quick Reference Guide here.

 

 

RECENTLY PUBLISHED: Consensus-based Care Recommendations for Congenital DM

You can see the Full version by Clicking here.

You can see the Quick Reference Guide here.

 

 

Please print these and take them to your doctors and caregivers as the new standards of care we expect for the condition. Alternatively - email us on emma@cmmd.uk or contact the MDF via their website. https://www.myotonic.org.