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Past Adventures

 

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Dregan's Birthday.

Sweet 16!

Miles made a quick surprise stop to Dregan's 16th Birthday party!

How could he not? - There was Harry Potter cake to be eaten!

HAPPY BIRTHDAY DREGAN!!!

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27th October 2015

MDUK Up-skilling day.

Miles and some of the team spent the day in Sheffield today, at an 'Upskilling' day with professionals such as Care Advisors, Physiotherapists, Speech Therapists and Occupational therapists.

We were given the opportunity to share some of our Knowledge of Myotonic Dystrophy. We hope it was a helpful day for all involved, and that we helped to spread awareness of the condition to those who are at the forefront of our care.

You can read more about the day here.

Thank you for inviting us MDUK!

24th October 2015

Checking out The Hilton - Blackpool!
Miles has had a great weekend in Blackpool! The Fight Fund have been checking out Venues for their upcoming Charity Ball - Miles gives The Hilton his ROAR of approval!!!

18th October 2015

Fundraiser in Whitton, UK.

I went with Dregan and some of the Fight Fund crew to Whitton, UK. It was for a village event called Apple Fest.

I had a great time, spent time with some of the Fight Fund kids, and met some new friends.

Here's me posing with the giant apple! We raised £58 for the charity!!!

8th October 2015

Josh is in Hospital.

Little Joshy was in hospital today for an operation. He had to have Grommets put into his ears so he can hear better. This means a General Anaesthetic - which we know can be risky for people with Myotonic Dystrophy.

So, I went along and stayed with him. Here I am with him while he was put to sleep - and I was there when he woke up too.

The operation went well!

 

 

28th September 2015

A supportive Roar for Emmie.

Emmie had a Paediatricians appointment today. We all know how sometimes all these clinical visits can be a bit tiresome, so Miles decided to pop along for the ride.

Here is Miles, Emmie, and her lovely Paediatrician, Dr Daley.

26th Sept 2015

Gosh - Another information day - this time Muscular Dystrophy UK Annual AGM and Conference!

Its a busy time of year for Miles and the CMMD-UK team!

Click here to be taken to this exciting page, and see which Celebrity he was rubbing paws with!

25th September 2015

Welcome to Hull - 'HMS Pickle'

Miles took a detour on the way to London to welcome the HMS Pickle back into the UK.

Click HERE to see how excited he was, and to learn more about the voyage!

19th September 2015

MDSG Conference - Nottingham

Miles had a lovely time at the Nottingham Myotonic Dystrophy Support Group Conference.

Click HERE to see what he got up to!

Chantelle's Birthday!

PARTY TIME!!!!

Miles is so excited to be travelling to visit Chantelle, for her VERY special Birthday party!

Happy 21st Birthday!!!!

Click HERE to see the awesome time I had with Chantelle and family!