Please find below a selection of links to other pages which may be of interest.
If you know of any other pages we may like to include, or run a group yourself, please contact us.
Our site is dedicated to CONGENITAL Myotonic Dystrophy, however, we fully appreciate that as a genetic disorder it, Adult onset DM1 is likely to affect familes in a profound way.
Our site aims to have as much information as possible, but we understand that we may not cover Adult Onset Myotonic Dystrophy in as much detail as would be liked, so we have included links to other wonderful sites who may be able to support families further and provide more relevant details and information.
"This site is owned and operated by Cure DM CIC, which is a nonprofit organization. Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."