We are glad you have found us!

Perhaps you have DM yourself, or are a parent of a child with Congenital Myotonic Dystrophy. You may be a grandparent, a relative or friend. Maybe you are a professional, researching the condition, or perhaps you are still unsure whether you or your child or loved one has Myotonic Dystrophy - everyone is welcome!

Please take time to have a good look at our site, and if you have any questions, ideas, information, or just want to say hello - please do feel free to email us!



Cure DM Presents at the International Myotonic Dystrophy Consortium (IDMC-13) 

We are delighted to have presented an updated poster at the IDMC, using results from the ongoing questionnaire here.

Presented by Emma-Jayne Ashley in June 2022 


CLICK HERE to see more on the IDMC.

You can also view the presentation in full here

Below you can see the slide-show from the community/charity update presentation. Follow the link above to see the full speech.



Final closing conference for the PREFER Patient study! Click HERE to see our updates and how we can benefit from the new patient preference framework! 



Miles Cubs!

CLICK HERE to find out how you could have your own cub!

Cure DM are delighted to announce our new campaign.

Miles is our much loved Mascot for our families and children living with DM, and in the past we have sent him to families in need of support or having a celebration. He is getting a bit old now, and wants to have a bit of a rest so will reside in the CURE DM shop.

Also…… it seems he has a litter on the way! 

We will be sending cubs out to the children in our community. This campaign is funded by our amazing supporters, we cannot do this without the ongoing fundraising and support we are receiving.

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THANK YOU to everyone who is helping make this possible. 


Donate/Fundraise for Cure DM

Raising Awareness / Provide Support / Fund Research


Cure DM is a registered charity, where all funds are used to provide family help and support to those living with the condition NOW. We arrange get togethers and enable families to connect, as well as funding/facilitating research. 

We would love your support in any way at all, please contact us to find out how we can help you, to help us, to help others!

email: curedm@outlook.com