As a children's nurse it never ceases to amaze me how our parents and children deal with the challenges given to them through consultations and diagnosis.
Much travel, little sleep, no answers, no hope, fear, very little support or information are just some of the things that spring to mind.
If I can raise awareness and money for this cause by sky diving indoors it could change the future for these families in treatment research and support.
Thank you for sponsoring me, In particular for the little boy I'm jumping for is called Joshy and he's an amazing wee fella with the most amazing family caring for him, breathing his every breath. I want to help overcome this horrible disease cruel to children from birth without any cure at present "