We are a group of families determined to find a cure for our children and grandchildren. We aim to raise awareness of this rare condition, so that vital funds for research can be raised to help find this cure. This is our FIGHT FUND!
We Urgently need to find a cure for ALL forms of Myotonic Dystrophy. Our fund to provide money for research which will benefit CONGENITAL. This is the rarer, more severe form of DM, and we still know very little about it. We hope to help change that.
Congenital Myotonic Dystrophy is not a disorder in its own right, it is the more severe form of DM1 - with symptoms apparent since birth. We aim to support research which is relevant to the Congenital form, if and when it becomes available. We will choose which programmes to support with this in mind.
In collaboration with, and with the support of MUSCULAR DYSTROPHY UK, we have started the fund. Our aim is to raise £50,000 a year, for an initial 3 year period. This will go to MDUK, where it has been ring-fenced to provide funding to the research programme we have chosen. More information on this can be found in our RESEARCH section.
So how can you help? Whether it be a one-off donation or if you would like to take part in an event or challenge, we welcome your fundraising efforts and will support you in any way we can.
Together we WILL make a difference,
Thank you,
Sarah, Sian, Emma-Jayne and Linda.
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Disclaimer:
"This site is owned and operated by Cure DM, which is a registered charity. Nothing contained in this site is or should be considered, or used as a substitute for medical advice, diagnosis or treatment. The site owners and administrators cannot accept any legal or personal liability for the outcomes of actions taken by you in using this information. This site and its information do not constitute the practice of any medical, nursing, registered dietitian or nutritionist, or other professional health care advice, diagnosis or treatment.
All items and articles are written by individual authors. The opinions expressed are entirely the authors' own, except where clearly indicated. We strongly advise you to speak with a medical professional about all aspects of the condition."